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The topic of international data sharing recently enlivened the ‘Twittersphere’ following a thought-provoking editorial by van Dyk and colleagues.1 They recommended that sporting federations, research institutions and clinicians collaborate to develop an international muscle injury registry. The proposal gained further momentum at the Second World Congress of Sports Physical Therapy, following a keynote presentation by Dr Rod Whiteley. In table 1, we outline the rationale for the creation of a muscle injury registry. An international muscle injury registry would present a novel opportunity to analyse large samples of individual patient data, which researchers aggregate in meta-research, rather than summary data from individual studies. We support the creation of a muscle injury registry, and present five important considerations.
Sharing is caring…and a patient registry can be the most robust way to share data
Public reporting, clinical observations and research findings contribute to patient registries, creating a ‘shared information environment’.2 A collaborative muscle injury registry compiling individual patient data would facilitate in-depth analysis of large sample sizes, enabling recommendations to be made about specific subcohorts to inform patient-centred …
Twitter @peanutbuttner @EamonnDelahunt @markroecoach
Contributors FCB: conceptual idea of the manuscript, writing of the manuscript and editing of the final draft. ED: editing of the final draft. MR: writing of the manuscript and editing of the final draft.
Competing interests None declared.
Provenance and peer review Not commissioned; externally peer reviewed.