Table 3

Supporting quotes

Theme 1: ‘Lay’ versus ‘informed’ perceptions of cause
Q1I have a history of being quite athletic, a dancer, for a lot of my developmental years. I do have hypermobility’. (Fleur)
Q2 ’I thought maybe it’s because I was cycling more. I was trying to cycle every day 20 to 25 kms …And I was trying to do more’. (Paige)
Q3 ’My back was just terrible, and it just escalated over the years… It was just getting progressively worse down the nerve down the leg’. (Owen)
Q4 ’It’s because I am getting old’. (Karen)
Q5 ’I had grandkids a few years ago and whether that might have exacerbated it. I’ve also had cancer and lost a lot of muscle tone. It's also been suggested I've got one leg longer than the other, some say yes, some say no. I don't know’. (Brooke)
Q6All the scans of everything seem to think that the sporting injury actually really isn’t that related to what I’ve got…The doctors have said I was due to get it because of the structure of where my body is sitting as far as my spine and hip’. (Nancy)
Q7 ’I know everything the doctors have said to me but it just seems too much of a coincidence that it all happened after (the slip)’. (Nancy)
Q8 ’Unfortunately, they see a lot of women over 50 who suddenly developed this. He said it is the tendon breaking down, degenerating. They said they didn’t think that anything causes it, it just spontaneously happens in women over 50. I’m just getting old and breaking down and there is nothing I can do about it’. (Ana)
Q9Well maybe it happened during sexual abuse, maybe damage happened… How can the hip end up with five different things wrong with it, and all pretty significant things? (…) But the doctor examined me and said the hip’s painful, he didn’t dispute that, but he thought the problem was the lower back. As soon as he said that, I remembered that I had taken a fall at yoga and I’d fallen on a wall hook that stuck out from the wall about. I started putting the pieces together and thought oh, well I can work with that information. That’s where I feel like I’ve got a bit of power back and I could start actually doing something with the hip’. (Chloe)
Theme 2: ‘Fissures and tears’: the use of the diagnostic jargon
Q10There’s fissuring in every single muscle: the obturator internus and externus, the glute max, the glute min are both very distressed. Then the head of the femur is leaking bone marrow into the hip joint, which is causing a lot of inflammation in the hip, and the acetabulum has fissures in it as well. I assume that’s what’s flipping and causing me the instant pain‘. (Chloe)
Q11 ‘All I could say was that it felt like it was catching. Until I had the MRI and was able to identify that there was some shredding, and some tears, and a stretching, the labral stretching’. (Fleur)
Q12 ’To read, essentially, four things that were in that one area, well two locations, but one area of my body let’s say, sort of one hand-span, I guess. All that stuff was going on in that area. It was really, really frightening and scary’. (Jane)
Q13There's a part of me that just wants to go in and say, “Look, you know what? Why don't you just go and open me up and have a look?”‘. (Ian)
Theme 3: Fixing damage and controlling symptoms
Q14 ‘I have to find a way to either deal with it or fix it’. (Dawn)
Q15 ‘If I can strengthen around it and if I can improve my core stability and the way that my hip works, then maybe I can decrease some of the laxities that I have’. (Mia)
Q16 ’The plasma injection - the first time it worked brilliantly…for three months, maybe even six months! Then it came back again. My general practitioner said I could expect that to happen, and he wanted a couple, maybe two or three goes. And so when I had to go back for the second one, it did nothing at all. He said “Don't waste your money. We're not doing it anymore’”. (Liam)
Q17He said almost every patient that he has seen that has exact same sort of tilted pelvis between the ages of 40 and 50 have to have hip replacement. So, I’ve made it, turned 46!’. (Dawn)
Q18 ‘Over these two years, I’ve tried everything. I’ve tried to be so proactive and I think at the point, I’d reconciled the idea of a hip replacement because nothing I’ve tried has worked for me’. (Nancy)
Q19 ’I guess that I just have to accept it. I don’t like it. But you just have to get old gracefully!’. (Karen)
Q20 ’Try to avoid, avoidance is the keyword… Avoid doing what makes it hurt’. (Karen)
Q21 ‘It doesn’t necessarily stop me from doing the activity, it’s more in terms of the general avoidance. If I can’t avoid it, I’ll still do it, but try to do it differently’. (Grant)
Q22I buy my own 75 mil acupuncture needles, and then just pop them in every so often… it is helping with pain management’. (Ian)
Q23After the first lot of injections, I thought it was good as gone. But then it came back, and I thought, I’m stuck with this’. (Karen)
Q24 ‘I don’t have a mental issue with it but every now and then, you think you’ve fixed it, found the problem and you find two or 3 weeks later it hasn’t recovered. So I don’t know what to do’. (Brooke)
Theme 4: Exercise, sleep and the threat to mental health
Q25 ‘Anything that I do physically helps me mentally… If I don't get to exercise for three or four days… I need to do something’. (Ian)
Q26 ‘I guess that worries me a bit underneath it all because one of the big things with cancer you have to do a lot of exercise’. (Brooke)
Q27 ‘I’ve got a mood disorder, so activity is quite a big factor in terms of the therapy regime. So it’s quite frustrating that I can’t do any cardiovascular exercise. I think my biggest fear is that they tell me “you’ll never be able jog again or never be able to do really cardio again,” because that’s the only real way to actually manage my mood disorder’. (Grant)
Q28 ’(If I could have) less pain, I'll then get more sleep, which means I'll then be more alert, and I can be physically more active, and then that will have a reinforcing effect on being able to sleep better, and I will have a fuller, more productive life. I'll be happier. So it’s a chain reaction’. (Helen)